Heart warriors are near and dear to us here at little minis and it was so amazing to get to know 6 year old Harlow and her amazing heart mama: Nicole (@nllm) Read on to be inspired by this mini super hero.
"Warrior: a brave or experienced or fighter. My darling Harlow I knew you would be strong and fierce. So many questions and wonder about your well-being and your special heart. Before you were born so many people gave us the wrong answers and the incorrect assumptions. I knew they were wrong. Educated with a warrior at home and a strong mama will; I did the research, I asked the hard questions and we received the perfect solution. Harlow Pacy-Grevich arrived screaming and calmed completely when handed to her Daddy. She had her first big surgical repair at 3 months and again 364 days later. Teleology of fallot is common but tricky. Texas Childrens provided us with top notch care and amazing results. You would never know her heart skips to a different beat! love that it’s stronger, louder and more defined just like her personality. Her bubbly personality and her curiosity shine through with each step. We love our warrior and we want the world to know she is ready! Medical advancements paved for the way for her future let’s work together to keep up the wonderful new things that’s are imploding in the field of cardiology moving forward."
First, thank you SO much for inspiring and guiding your fierce warrior!
We would love to get to know her! (Share how old she is, some fun personality traits, what her favorite things to do are…)
When did she become a warrior? (Was she born with it?)
Born discovered in utero as her brother is Also a warrior!
Tell us more about the condition.
Tetralogy of Fallot. Tetralogy of Fallot is a combination of four congenital abnormalities. The four defects include a ventricular septal defect (VSD), pulmonary valve stenosis, a misplaced aorta and a thickened right ventricular wall (right ventricular hypertrophy).
Tell us how it has changed you.
Advocate for your children and remember someone always has it worse then you. I’m a stronger Mom and person. You never know how strong your children are until you see them in a fragile state.
How has it changed her.
She is so strong and fierce, this will never slow her down, she will only be stronger because of it! She loves to tell her story to others about her special heart :hearts:
Tell us something that we as a community can do to support you and your warrior.
Wear red for all heart :hearts: kids in feb! Advocate for your local heart community and volunteer!
Thank you SO much for sharing your amazing story and journey.